[nfb-db] Delcenia -- Usher2

[Cherifields at aol.com]

Hey Trish,
 
You said you just got your hearing aids that are  great?   I wondered if 
you know what kind?  I have an aid in my  left ear that is a Seamans and I am 
not real thrilled with it.  The last  aids were from Starky and they were 
okay.  I went to the Speech and Hearing  Clenic to get this one.  The 
audiologist told me it was the top of the  line.  The sounds are distorted and I 
still miss a lot.
Blessings,  
Cheri
 
 
In a message dated 3/20/2014 1:02:28 P.M. Pacific Daylight Time,  
palhub at optonline.net writes:

Thanks,  Delcenie.  I have optic atrophy and auditory  neuropathy.  I  don't
know anything about RP or Ushers.  I have a bgalance  problem.  The fact 
that
people with RP and Usher don't have the  balance issue tells me that its not
hearing related.  This past  January, I received a top of the line hearing
aid at HKNC for my right  ear.  I have a CI on the left side.  I think I'm
doing better now  with hearing and functioning than I have in a long time. I
live on Long  Island, but I've never been a full time student at HKNC.  When
I need  training in something, I get at-home services, not because I'm house
bound,  its cheaper for NYS.   I am, though, going to to be going up to  
HKNC
in a few weeks to finish a tech evaluation I started back in  Januray.  

Trish 

-----Original Message-----
From:  nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of  Darlene
Laibl-Crowe
Sent: Thursday, March 20, 2014 3:46 PM
To: 'NFB  Deaf-Blind Division Mailing List'
Subject: [nfb-db] Delcenia --  Usher2

Hello, Delcenia!  Nice to meet you!  I am from Florida  and I also have 
Usher
2.  I was able to go to HKNC because I advocated  for myself to the state 
and
justified as to why I needed their  services.  My reasoning was that there
are NO services for Adult Deaf  Blind individuals in the State and I had 
also
been a client of DBS since  1986.  By the way, DBS means Division of Blind
Services.  Anyway,  after a few years I kind of got lost in the state's
system and was not  getting the services I needed.  So when I began to lose
more hearing  and vision I struggled in a huge way.  I didn't know anything
about  HKNC until I started doing research And found out about the Florida
Deaf  Blind Association.  I soon met HKNC Southeast rep and many of  the
members of that organization and within a year I was hearing to  NY.  

The training is very expensive but the state more than  willingly paid for
that service.  I am so grateful that they  have.  Now, the state has grown
because I do all I can advocate and  educate them and others as needed.  I
don't know everything but what I  don't know I do my best to find out.  One
thing that I have learned is  that it is important to know what resources 
are
out there and how you can  use it for your specific needs.  HKNC taught that
to me and it is  something that needs to be taught to many.

As for the balance issue, I,  too, did not have problems with balance but
I've noticed more lately that I  am getting dizzy...I think it is because I
can't quite focus on something  to maintain a sense of balance.  It isn't 
too
bad...and hopefully it  won't get worse.  

My guide dog is wonderful about being sure I am  good on my feet.  I've
noticed when I get a little off balanced she  will slow down and let me kind
of lean on her a bit to get myself oriented  again.  She is amazing and I am
so glad I have her.  

I,  too, am fairly new to NFB...a little over a year now.  NFB is a  great
learning experience as well!

Hope you are able to go to HKNC,  it is very a rewarding experience!!


(smile)
Darlene

"God  wants to breathe new life into your dreams. He wants to breathe new
hope  into your heart. Don't give up. Hold on and you'll begin to see Him  
do
amazing things"
~           Joel  Osteen




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