[nfb-db] Usher 3

[Cherifields at aol.com]

Hey Janice, we need to tell everybody on this list that if  your NFB 
affiliate does not have a deaf-blind committee or division, you should  join our 
national deaf-blind division and help us with "Operation  Outreach".  The 
conference call is next Wednesday night at 8:00p EDT. 
 
Janice is our secretary and will send you the number if you  let her know 
you are interested.  
 
The states that have deaf-blind contacts are the first to know  of what 
comes down the pike like the I Can Connect program.  and other  things that 
pertain to the deaf-blind from the national NFB DB Division.   Join us in our 
fight for equality  with the rest of the NFB.
 
 
 
In a message dated 3/26/2014 10:54:40 A.M. Pacific Daylight Time,  
soulalibi at gmail.com writes:

Hi  Janice,
I'm not surprised. I've always been confused about Ushers 3. All I  knew 
is that folks with Ushers type 3, also have a combination of other  
physical disabilities.  As for me, I haven't been *officially*  diagnosed 
with having Usher's type-2, yet. Just the fact that the  "experts", like 
the one over at HKNC, told me I have Usher's type-2. The  only changes 
I've seen over the years are with my eyes. My vision had  decreased since 
I was 25. And I only started using a white cane after  HKNC. But my 
hearing remains intact. Even after receiving a CI. It had  only boost my 
hearing capacity in that regard.

--S.W.
On  3/25/2014 5:09 PM, Janice Toothman wrote:
> Hi S.W.
> I have  Usher's 3 I did not receive this diagnosis until I was 42 years 
> old.  I lost my sight within two years and most of my hearing. I have 
>  balance problems neuropathy and other problems.
> Janice
>
>  On 3/21/2014 9:08 AM, Shadow Wolf wrote:
>> Hello  April,
>>
>> Everyone who has Usher's will eventually lose  their vision at one 
>> time or another. And I think those with  Usher's 1 and 3 also have 
>> balance problems. I believe that  Usher's 1 starts at birth or at a 
>> young age. I admit, I don't  know much about either Usher's 1 or 3. 
>> But those who suffer from  Usher's 1 or 3 tend to have other psychical 
>> disabilities other  than just the eyes and ears.
>>
>>  --S.W.
>>
>> On 3/21/2014 4:05 AM, April Brown  wrote:
>>> Good Morning,
>>>
>>>   Even though I can't get a proper diagnosis, I am  leaning 
>>> toward Usher 3.  I only have one eye with  vision, and it has 
>>> dramatically decreased in the last year,  with all kinds of odd 
>>> symptoms.   Of course, my  vision issues are complicated by double 
>>>  colobomas.
>>>
>>>        My  hearing is worse as well.  I do not hear low toned voices  
>>> well.  And comprehension of spoken words is extremely  slow.  In 
>>> fact, for over a decade, I had used closed  captioning on the tv to 
>>> understand most shows, until my  vision loss no longer allows me to.  
>>> So now, many  science shows I would otherwise enjoy, I can not hear 
>>> or  see.
>>>
>>>       I have much  much information on the prognosis of Usher 1 and 
>>> 2.  Not  much on Usher 3.
>>>
>>>       Will my vision reach a spot and stay there?  I only have  
>>> about 1/4 of an eye left.  The tiny lower corner of my  right eye 
>>> next to my  nose.
>>>
>>>         Does  anyone have a link to a site with good information 
>>> about  Usher 3?
>>>
>>>  Thanks,
>>>
>>>
>>> April  Brown
>>>
>>> Writing dramatic adventure novels  uncovering the myths we hide  behind.
>>>
>>>
>>>
>>>  _______________________________________________
>>> nfb-db mailing  list
>>> nfb-db at nfbnet.org
>>>  http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>
>
>  _______________________________________________
> nfb-db mailing  list
> nfb-db at nfbnet.org
>  http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-- 
*~Shadow  Wolf~*


_______________________________________________
nfb-db  mailing  list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20140326/6494dbea/attachment.html>