[Nfbc-info] Mentor for the parent of a blind student with ONH in Southern CA?

[DrV]

Hi Christopher,

I suggest she connect with NOPBC directly. Everyone’s situation is so very
different.

Below are a couple direct NOPBC links for her to explore.

I think the best forum for her to start reaching out to connect with
parents & caring VI professionals with a broad spectrum of situations &
experiences is the NOPBC Facebook group. The group is very active with
daily posts & is incredibly supportive & helpful. I think that using that
venue she will find the most helpful & functional advice that she can apply
to her specific situation. There are quite a few parents/families in the
group who live in California, but may not be that well connected with the
local NFB – I met one such family at an out of state beach this summer!

I also strongly recommend that she sign up to received Future Reflections
which is has many inspiring stories, articles, & perspectives.

I can’t over-recommend that she be encouraged to attend next year’s NFB
Convention in Vegas – not that far away from Orange County – LOTS of
parents & great talks & seminars & experiences for parents & kids of all
ages (if finances are an impeding issue, perhaps she could apply for a
scholarship/sponsorship).

In the spring there is the CTEBVI Conference for TVIs, transcribers, &
parents with a wide variety of great workshop topics & tons of
braille-focused resources & one of the best exhibit halls. The whole
conference has great stuff for parents, but they have parent strand & in
recent years there has been a whole day parent workshop. It flips between
Northern & Southern CA every other year.

I’ll echo Tim’s invitation & suggestion she attend the California State
Convention in a few weeks – it’s pretty local for her. I have to work
Friday morning, but will be there for the rest of the convention & am
certainly happy to talk to any parent who attends.



NOPBC Facebook Page: www.facebook.com/groups/331066810353777/

NOPBC Webpage: https://nopbc.org

NOPBC Listserv: www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org

NOPBC Future Reflection Magazine:https://nfb.org/future-reflections

NFB of California State Convention: www.nfbcal.org/convention

CTEBVI Conference www.ctebvi.org/workshops.html



All the best,

Eric Vasiliauskas



On Fri, Sep 28, 2018 at 12:10 PM Tim Elder via NFBC-Info <
nfbc-info at nfbnet.org> wrote:

> Chris,
>
> She should come to our convention on October 25-28 in Los Angeles.
> http://www.nfbcal.org/convention/
>
> ON Saturday, October 27, at 12:30 PM, we have an expert panel of IDEA and
> special dedication topics that are specifically targeted at parents.  It
> would be a great opportunity for her to meet other parents and learn about
> the basic concepts and legal rights.  We could better assess her situation
> and connect her with a mentor if she comes to the convention.
>
> Regards,
>
> Tim
>
> -----Original Message-----
> From: NFBC-Info <nfbc-info-bounces at nfbnet.org> On Behalf Of Christopher
> Sabine, ONH Consulting via NFBC-Info
> Sent: Wednesday, September 26, 2018 5:28 PM
> To: 'NFB of California List' <nfbc-info at nfbnet.org>
> Cc: Christopher Sabine, ONH Consulting <info at onhconsulting.com>
> Subject: [Nfbc-info] Mentor for the parent of a blind student with ONH in
> Southern CA?
>
> Hello.
>
>
>
> My name is Christopher Sabine, and I am Secretary of the Federation Chapter
> in Cincinnati, Ohio. I've joined the California list for employment related
> reasons in the past and have posted here previously.
>
>
>
> I am a consultant for families of children with Optic Nerve Hypoplasia. I
> am
> writing because I am potentially about to start working with the mother of
> a
> child with ONH and total Blindness in Orange County, CA (Huntington Beach).
> The parent is dealing with a lot of personal issues and having difficulty
> with the TVI at the child's local school formulating an IEP. Do you know
> where I can determine if NOBPC has a Chapter there and if there is a parent
> who is in a position (personally / professionally) to work with this
> family?
> Specifically, I am looking for a parent mentor / advocate who can
> facilitate
> IEP meetings for this family and physically attend IEP meetings / serve as
> a
> coach / voice of reason for this parent as needed. The real issue is that
> the child needs access to braille instruction. I suspect there may also be
> developmental differences involved that the local educational agency /
> school district is not in a position to recognize.
>
>
>
> Any information or referrals would be greatly appreciated.
>
>
>
> Thanks Much,
>
>
>
> Chris
>
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