[Nfbc-info] Mentor for the parent of a blind student with ONH in Southern CA?

[tim at timeldermusic.com]

Chris,

She should come to our convention on October 25-28 in Los Angeles.
http://www.nfbcal.org/convention/

ON Saturday, October 27, at 12:30 PM, we have an expert panel of IDEA and
special dedication topics that are specifically targeted at parents.  It
would be a great opportunity for her to meet other parents and learn about
the basic concepts and legal rights.  We could better assess her situation
and connect her with a mentor if she comes to the convention.

Regards,

Tim

-----Original Message-----
From: NFBC-Info <nfbc-info-bounces at nfbnet.org> On Behalf Of Christopher
Sabine, ONH Consulting via NFBC-Info
Sent: Wednesday, September 26, 2018 5:28 PM
To: 'NFB of California List' <nfbc-info at nfbnet.org>
Cc: Christopher Sabine, ONH Consulting <info at onhconsulting.com>
Subject: [Nfbc-info] Mentor for the parent of a blind student with ONH in
Southern CA?

Hello.

 

My name is Christopher Sabine, and I am Secretary of the Federation Chapter
in Cincinnati, Ohio. I've joined the California list for employment related
reasons in the past and have posted here previously.

 

I am a consultant for families of children with Optic Nerve Hypoplasia. I am
writing because I am potentially about to start working with the mother of a
child with ONH and total Blindness in Orange County, CA (Huntington Beach).
The parent is dealing with a lot of personal issues and having difficulty
with the TVI at the child's local school formulating an IEP. Do you know
where I can determine if NOBPC has a Chapter there and if there is a parent
who is in a position (personally / professionally) to work with this family?
Specifically, I am looking for a parent mentor / advocate who can facilitate
IEP meetings for this family and physically attend IEP meetings / serve as a
coach / voice of reason for this parent as needed. The real issue is that
the child needs access to braille instruction. I suspect there may also be
developmental differences involved that the local educational agency /
school district is not in a position to recognize. 

 

Any information or referrals would be greatly appreciated.

 

Thanks Much,

 

Chris

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