[blindkid] ordered our first cane

[Richard Holloway]

That's an excellent point Joy.

It reminds me of how the surgeons who did Kendra's eye surgeries who  
were highly recommended and excellent doctors (Truly!) were almost  
completely useless as far as any guidance or direction as to where to  
begin once all hope for surgical assistance to save some vision was  
lost.

The fact of the matter was that Kendra was going to have Low Vision at  
BEST (she has no light perception at this point) so from the start it  
would have been great if they had said "hey, by the way, you may want  
to go to the center for the visually impaired downtown" or to check  
into the NFB / NOPBC or pretty much any group that offers help or  
guidance.

It is easy to assume that a professional and expert in one area knows  
about other areas that relate to our kids but in reality there's a  
good chance that they may not.

I wish we could put a stack of NOPBC brochures in every one of these  
people's offices. We'll have to add that to our "to-do" list. (We have  
taken brochures for our state group to our own eye doctor's-- thats a  
start at least...)

Richard



On Mar 26, 2010, at 3:16 PM, Joy Orton wrote:

> Dear Marie,
> You wrote
>
> Our son loves to "read" and label (by speech) things which makes it
> all the more infuriating that his vision rehab doc said I don't know  
> that
> reading is a primary concern for him right now at his appointment on  
> Monday.
> Marie
>
> Just a thought--remember that the medical person is not necessarily an
> expert in education and learning. We don't take advice about car
> maintencance from a dentist, even if he is a great dentist and a  
> really
> smart guy. If your son is pretending to read, he is getting ready  
> for true
> reading, and that shows you are doing the right thing with the labels.
>
> Joy Orton
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