[blindkid] ordered our first cane

[Nelly Gamino]

I absolutely agree. The first optholmologist who saw our son basically sent us home with a come back in 3 months for follow and and we'll be able to see better if he'll have useful vision. At the 3 month checkup we asked about Early Intervention program that we had heard about and he said 'no, it is too early for that'. Thank God we did not listen to him and instead called the state as a friend who has a child with cerebral palsy had recommended and started the therapies immediately.
 
> From: rholloway at gopbc.org
> To: blindkid at nfbnet.org
> Date: Fri, 26 Mar 2010 15:42:24 -0400
> Subject: Re: [blindkid] ordered our first cane
> 
> That's an excellent point Joy.
> 
> It reminds me of how the surgeons who did Kendra's eye surgeries who 
> were highly recommended and excellent doctors (Truly!) were almost 
> completely useless as far as any guidance or direction as to where to 
> begin once all hope for surgical assistance to save some vision was 
> lost.
> 
> The fact of the matter was that Kendra was going to have Low Vision at 
> BEST (she has no light perception at this point) so from the start it 
> would have been great if they had said "hey, by the way, you may want 
> to go to the center for the visually impaired downtown" or to check 
> into the NFB / NOPBC or pretty much any group that offers help or 
> guidance.
> 
> It is easy to assume that a professional and expert in one area knows 
> about other areas that relate to our kids but in reality there's a 
> good chance that they may not.
> 
> I wish we could put a stack of NOPBC brochures in every one of these 
> people's offices. We'll have to add that to our "to-do" list. (We have 
> taken brochures for our state group to our own eye doctor's-- thats a 
> start at least...)
> 
> Richard
> 
> 
> 
> On Mar 26, 2010, at 3:16 PM, Joy Orton wrote:
> 
> > Dear Marie,
> > You wrote
> >
> > Our son loves to "read" and label (by speech) things which makes it
> > all the more infuriating that his vision rehab doc said I don't know 
> > that
> > reading is a primary concern for him right now at his appointment on 
> > Monday.
> > Marie
> >
> > Just a thought--remember that the medical person is not necessarily an
> > expert in education and learning. We don't take advice about car
> > maintencance from a dentist, even if he is a great dentist and a 
> > really
> > smart guy. If your son is pretending to read, he is getting ready 
> > for true
> > reading, and that shows you are doing the right thing with the labels.
> >
> > Joy Orton
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> 
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