[blindkid] an update on Joey
poetlori8 at msn.com
Thu Apr 18 18:49:05 UTC 2013
Tuesday, I am so sorry to hear this. I have known a few children--during my
childhood--who had this, too.
Writing free verse is like playing tennis with the net down.--Robert Frost
Sent: Thursday, April 18, 2013 11:06 AM
To: blindkid at nfbnet.org
Subject: [blindkid] an update on Joey
Hello everyone ...
I just wanted to send out an update on our little Joey. We recently
traveled from Cincinnati to Cleveland to get a second opinion from the
Retina specialist there. When we saw him he reviewed Joey's records and told
us that he was certain that Joey had Battens Disease. We had gone down this
road before and thought we had this ruled out. Once back in Cincinnati we
had some blood work done and got the results back two days ago. It breaks my
heart to say that Joey does in fact have have Battens Disease. We will be
getting the other kids tested soon as they have a chance to have this horrid
disease as well.
I just want to thank you all for your emails and responses in the past. Our
family really appreciates it!
If any of you are on Facebook and would like to follow our Journey dealing
with Battens please like our page.
Our goal is to raise awareness about Battens disease.
Tuesday & Family
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