[nfb-talk] Fwd: Your Tailored Non-24 Support Program is in The Works

Peter Donahue pdonahue2 at satx.rr.com
Tue Apr 1 15:28:17 UTC 2014

Good morning David and everyone,

    Thanks for the information. Perhaps I'll finally be able to get a 
straight answer from these folks concerning sleep studies to rule out known 
sleep disorders prior todetermining that a blind person suffers from Non 24 
Disorder. The day of reckoning is at hand and so there may never elsewhere 
be another Philadelphia tragedy! All the best.

Peter Donahue

----- Original Message ----- 
From: "David Andrews" <dandrews at visi.com>
To: <blindtlk at nfbnet.org>
Sent: Tuesday, April 01, 2014 3:32 AM
Subject: [nfb-talk] Fwd: Your Tailored Non-24 Support Program is in The 

>I am forwarding this for its informational value.  I know that this topic 
>is controversial in some circles, and others are supportive.  Either way 
>you should be informed.

David Andrews

>Non-24 Logo
>We're here for you.
>Call a health educator toll-free at
>1-844-404-2424 to get answers
>to your questions about
>Non-24 seven days a week,
>24 hours a day.
>Coming Soon - Non-24 tools,
>tips and resources.
>Hello again. Thank you for signing up to receive the latest information 
>about Non-24, and for supporting the blindness community.
>Since we were last in touch, we've finished reviewing a survey filled out 
>by over 500 people who are totally blind and living with Non-24 symptoms. 
>We wanted to learn the types of information you would find helpful and 
>educational in your journey with Non-24.
>    * 29% of respondents said that a guide to help their doctor become 
> educated about Non-24 would be helpful
>    * 25% opted for a tool that helps them know if they may have Non-24
>    * 33% of respondents shared that websites are the most preferred method 
> to learn about Non-24, followed by Braille print materials (25%) and Email 
> (17%)
>Based on your insights and suggestions, we're crafting a support program 
>that provides what you've asked for. When it launches, we'll reach out to 
>you first, so stay tuned!
>The Non-24 support program you helped design will feature:
>    * A podcast series featuring doctors who have experience with Non-24 
> and its symptoms
>    * Interviews with people living with Non-24 to understand the daily 
> impact of its symptoms
>    * Tips, tools and resources for living with Non-24
>And based on your feedback, we're also developing a Guide to Understanding 
>Non-24 for you to share with your doctor. We heard you. We understand that 
>it's important that your doctor understands the scientific reasons for 
>While we're putting the finishing touches on your tailored support program, 
>take a few minutes to hear more about the latest Non-24 information by 
>and Events now.
>Use the links below to spread the word about Non-24, and to raise awareness 
>and support for the Non-24 community.
>Facebook Share
>Twitter Share
>Email Share
>via Facebook
>via Twitter
>via Email
>Want one-on-one support?
>Speak with a Non-24 health educator by calling toll-free 
><tel://1-844-404-2424>1-844-404-2424. We're here for you 24 hours a day, 
>every day. That's <tel://1-844-404-2424>1-844-404-2424.
>Get support at 
>Don't want to get any more emails? We'll miss you. Click 
>link to opt out of any further Non-24 information communications.
>Vanda Logo
>of Use 
>2200 Pennsylvania Avenue NW Suite 300E Washington, DC 20037
>©2014 Vanda Pharmaceuticals Inc. All rights reserved. N240224 3/2014
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