[nfb-talk] Fwd: Your Tailored Non-24 Support Program is in The Works

Loren Wakefield theweird1 at mediacombb.net
Tue Apr 1 16:20:30 UTC 2014


Information to that extent has been discussed here.  So maybe they can put
it in a way that will make it acceptable to you.  Anyway, I'm glad to see
this as well.  Thanks David for passing it along.  

Loren 



-----Original Message-----
From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Peter
Donahue
Sent: Tuesday, April 01, 2014 10:28 AM
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] Fwd: Your Tailored Non-24 Support Program is in The
Works

Good morning David and everyone,

    Thanks for the information. Perhaps I'll finally be able to get a
straight answer from these folks concerning sleep studies to rule out known
sleep disorders prior todetermining that a blind person suffers from Non 24
Disorder. The day of reckoning is at hand and so there may never elsewhere
be another Philadelphia tragedy! All the best.

Peter Donahue


----- Original Message -----
From: "David Andrews" <dandrews at visi.com>
To: <blindtlk at nfbnet.org>
Sent: Tuesday, April 01, 2014 3:32 AM
Subject: [nfb-talk] Fwd: Your Tailored Non-24 Support Program is in The
Works



>I am forwarding this for its informational value.  I know that this 
>topic is controversial in some circles, and others are supportive.  
>Either way you should be informed.


David Andrews



>Non-24 Logo
>
>
>We're here for you.
>Call a health educator toll-free at
>1-844-404-2424 to get answers
>to your questions about
>Non-24 seven days a week,
>24 hours a day.
>
>Coming Soon - Non-24 tools,
>tips and resources.
>
>Hello again. Thank you for signing up to receive the latest information 
>about Non-24, and for supporting the blindness community.
>
>Since we were last in touch, we've finished reviewing a survey filled 
>out by over 500 people who are totally blind and living with Non-24
symptoms.
>We wanted to learn the types of information you would find helpful and 
>educational in your journey with Non-24.
>    * 29% of respondents said that a guide to help their doctor become  
>educated about Non-24 would be helpful
>    * 25% opted for a tool that helps them know if they may have Non-24
>    * 33% of respondents shared that websites are the most preferred 
>method  to learn about Non-24, followed by Braille print materials 
>(25%) and Email
> (17%)
>
>Based on your insights and suggestions, we're crafting a support 
>program that provides what you've asked for. When it launches, we'll 
>reach out to you first, so stay tuned!
>
>The Non-24 support program you helped design will feature:
>    * A podcast series featuring doctors who have experience with 
>Non-24  and its symptoms
>    * Interviews with people living with Non-24 to understand the daily  
>impact of its symptoms
>    * Tips, tools and resources for living with Non-24
>
>And based on your feedback, we're also developing a Guide to 
>Understanding
>Non-24 for you to share with your doctor. We heard you. We understand 
>that it's important that your doctor understands the scientific reasons 
>for Non-24.
>
>While we're putting the finishing touches on your tailored support 
>program, take a few minutes to hear more about the latest Non-24 
>information by clicking 
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/1/16/
>6>News
>and Events now.
>
>Use the links below to spread the word about Non-24, and to raise 
>awareness and support for the Non-24 community.
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/2/16/
>6>
>Facebook Share
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/2/16/
>6> 
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/3/16/
>6>
>Twitter Share
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><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/4/16/
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>via Facebook
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>
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/6/16/
>6>Share
>via Email
>
>Want one-on-one support?
>Speak with a Non-24 health educator by calling toll-free 
><tel://1-844-404-2424>1-844-404-2424. We're here for you 24 hours a 
>day, every day. That's <tel://1-844-404-2424>1-844-404-2424.
>
>Get support at
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/7/16/6>No
n-24.com.
>
>Don't want to get any more emails? We'll miss you. Click 
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/8/16/
>6>this link to opt out of any further Non-24 information 
>communications.
>
>
>Vanda Logo
>
>
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/9/16/
>6>Unsubscribe 
><https://c.appatureinc.com/r/148/f775c9bccace998864174a5373b7a335/10/16
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>of Use
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>©2014 Vanda Pharmaceuticals Inc. All rights reserved. N240224 3/2014
>
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