[Fopbc] Fwd: Blind Child/Young Adolescent Study

Tue Oct 13 00:50:08 UTC 2009

----Original Message-----
From: Sleep and Mood Disorders Lab  <sleeplab at ohsu.edu>
To: BVI-Parents at yahoogroups.com
Sent: Mon, Oct  12, 2009 7:58 pm
Subject: [BVI-Parents] Blind Child/Young Adolescent  Study

Hello,

My name is Amber Laurie, and I am a Research Assistant in  the Sleep and 
Mood Disorders Laboratory of Oregon Health and Science  University in 
Portland, Oregon. I am writing you to ask for your help in  reaching family members 
and educators of blind children and young adults who  may be interested in 
participating in a study currently taking place under the  direction of Dr. 
Alfred Lewy. We are looking for blind children (ages 5-8) and  blind young 
adults (ages 17-20) who have little or no light perception. The  purpose of 
this study is to identify abnormal body rhythms and sleeping  patterns of 
blind children and young adults and to determine if these rhythms  affect sleep 
quality and social/academic functioning. 

The body clocks  of sighted people are reset every day by the daily rising 
and setting of the  sun, a process that is not possible for the blind, as 
they cannot receive  light through their eyes. This causes many completely 
blind children and  adults to suffer from sleep problems. Blind children and 
teenagers tend to  have body rhythms which free-run, meaning that their 
natural body rhythms  drift later each day, causing sleep and activity problems. 
This is similar to  the jet lag that people sometimes experience when they 
travel. (For more  information on this phenomenon, type "circadian rhythms in 
the blind" into  your internet browser.) We think that understanding and 
treating this problem  is important for the social and academic functioning of 
blind children in the  US, with the results of our study potentially 
extending worldwide and  benefiting sighted children and young adults as well. 

We will measure  body rhythms by using sleep diaries and wristwatch-style 
activity monitors,  and by sometimes measuring melatonin levels in saliva. 
Sleep quality and  daytime functioning will be determined by questionnaires 
completed by  participants, teachers, and parents. The studies may also 
involve daytime  saliva collection sessions, collected at the participants' home. 
All costs of  participation will be covered by the investigators.

There are a number  of ways you could help us get the word out about this 
study. First, you could  distribute the included flyers to families with 
blind children and young  adults. It would also be helpful for us to know about 
publications that are of  interest to families with blind children, so that 
we may distribute  advertisements to those publications.

If you know of any potential  candidates who may qualify and/or who are 
interested in learning more about  the study, or if you know of any 
publications that are distributed to families  with blind children and young adults, 
please have the candidate and/or their  parent(s) contact me at 
_sleeplab at ohsu.sle_ (mailto:sleeplab at ohsu.edu)  or  503-494-1402.

Thank you very much for your help, and I hope to hear  from you soon. 

Sincerely, 

Amber Laurie

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